In the past six years, the beNeFit has raised over $25 million to end neurofibromatosis (NF). Together, thousands of amazing supporters have broken all fundraising records to advance research toward a cure for this devastating disorder. This extraordinary outpouring has provided hope to the 2.5 million kids and adults who battle this relentless beast every day.

Thank you for an amazing and successful night !

Saturday, November 17, 2018 was a remarkable evening in the fight to end NF, thanks to the generosity of over 2000 donors.

A recap of the beNeFit VI coming soon!

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New to the beNeFit? Enjoy Dan and Jennifer’s recap below of the beNeFit V!

Cobo Center Grand Ballroom,
the beNeFit V, Detroit, 2017

The night of November 18, 2017 was spectacular. Over 1,700 amazing supporters showed their commitment to fighting the genetic condition neurofibromatosis (NF) at the beNeFit V gala in downtown Detroit. Over $5 million was raised for NF Forward and the Children’s Tumor Foundation ( on that fine evening in the Motor City to fund critical research to end NF for good.

Check out our video recap of the event itself here.

Teaqua Jacobs and Jada Smoot,
Strength and Honor Award recipients,
the beNeFit V, Detroit, 2017

At this year’s beNeFit, we presented brave 11-year-old Jada Smoot along with her mother Teaqua Jacobs with the annual ‘Strength and Honor Award’.

We are thankful that this impressive NF-affected mother and daughter shared their fascinating and inspirational story with all of us. Here is the actual video we shared at the event about Jada and Teaqua’s life.

We got a taste of Jada’s strength, which radiated for everyone that evening… “Don’t let the bullies get to you. Live your life to the fullest and don’t let the haters get you down.”

Listen to Jada’s touching speech at the event here.

Mayor Mike Duggan and Dan Gilbert,
the beNeFit V, Detroit, 2017

We were humbled by the turnout and the results. It was remarkable to see so many different people coming together to serve a cause we care deeply about. We simply cannot thank everyone enough for their unending gratitude, participation, support and for just plain caring.

Please mark your calendars for the beNeFit VI in Detroit on Saturday, November 17, 2018. We will continue to host these galas until the happy day that we cease to need one, because the victory over NF will be won. That gala will be the best one of all!